If you are living with EB you may require some employment support - from job searching and interviewing to understanding workplace and employment rights. The information included in this section aims to give an overview of options for people living with EB, as well as offer resources for where to receive additional employment support.
There are a lot of useful tips relevant to anyone looking to change their job or enter the world of employment, so please do share this page with friends and family.
More information will be added as it's developed. Until then, or to talk through any of the information and how it relates to your individual situation, please contact your DEBRA EB Community Support Manager for assistance.
If you are working in the UK, you are not required to tell your employer if you have a disability or if you are living with a health condition, but it might be helpful, especially if you think you may require additional support or adaptations to carry out the role. Read more
If you are a carer for someone living with EB and also have a job, you are not alone. The information below aims to help you understand your rights in the workplace whilst acting as a carer. Read more
If you're struggling and need support, our EB Community Support Team are here to help. Read more
Based on our discussions with people living with EB, we have put together a list of frequently asked questions below. Read more
There are many agencies available to help support people looking for work, including people living with EB. Read more