People living with EB may require support in their educational journey, as well as an understanding of EB by their schools and peers. The information included in this section aims to give an overview of options for people living with EB, as well as serve as a resource for educational settings to learn more about and better understand EB.
More information will be added as it's developed. Until then, or to talk through any of the information and how it relates to your individual situation, please contact your DEBRA EB Community Support Manager for assistance.
Starting school is a milestone moment but you may worry about how your child can be kept safe in a school environment. Find out more about starting school with EB. Read more
The level of support that your child or young person requires is not dependent on their EB type but on how it impacts them and their learning. Find out more about support at school for students with EB. Read more
Sometimes, worrying about how you look or how other people might act can affect how you feel about yourself. Find out more about making friends, building confidence and dealing with bullying with EB. Read more
Going to secondary school is a milestone for every young person as they transition from being the oldest in the school to the youngest in a new environment and amongst new friends. Find out more about going to secondary school with EB. Read more
As well as being an exciting time for many, living with EB and starting sixth form or college may also present challenges that other teenagers don’t need to think about. Find out more about going to college and independence with EB. Read more
University can be an exciting time, but you might also feel overwhelmed at the thought of being away from home or having to cope with new challenges. Find out more about preparing for university with EB. Read more
We asked Members to tell their experiences of what life has been like living with EB and going through school – from primary through to university. Read more
Attending school is a huge part of a child’s life. It provides structure and stability, as well as helping children develop crucial social, emotional and behavioural skills. Find out more about how schools and teachers can support a child living with EB. Read more
Based on our discussions with people living with EB and their families, we have put together a list of frequently asked questions in education for living with EB. Read more
If you're struggling and need support, our DEBRA EB Community Support Team are here to help Read more