Our Parent Pitstops are online events providing an opportunity for parents, grandparents and carers to connect via Zoom and share experiences and ideas about topics relevant to children and families living with all types of EB.
Are there any specific topics you'd like to discuss at a Parent Pitstop? Please send your suggestions to us at [email protected].
If you're an adult living with EB and would be willing to join one of our Pitstop events to share your experiences with parents of children living with EB, please let us know.
The Parent Pitstop was a great forum to exchange experiences and discuss practical problems with regards to our children with EB. Being completely new to this new life with a child with EB, it was great to know you're not alone and there is a community to support you. It was also the place I made close friendships, with people who truly understand what you are going through. DEBRA Member
The Parent Pitstop was a great forum to exchange experiences and discuss practical problems with regards to our children with EB. Being completely new to this new life with a child with EB, it was great to know you're not alone and there is a community to support you. It was also the place I made close friendships, with people who truly understand what you are going through.
DEBRA Member
This Parent Pitstop will be an opportunity to share tips and strategies to support children and young people in coping with EB at school, college and university. Read more