DEBRA UK is leading a project with The James Lind Alliance to identify the most important unanswered research questions about all types of EB.
We have partnered with DEBRA Ireland and DEBRA Canada for this project, and together formed an EB Priority Setting Partnership which includes patients and carers affected by EB, as well as healthcare professionals who work with those affected by EB. Together we’ll be engaging the EB community to help us understand what EB research should be focused on finding out and creating links with research partners to make it happen.
Take our survey now!
This should take you around 12 minutes to complete, and DEBRA members who tested it for us said it was “easy to complete” with “very useful” prompts to help you think about your unanswered questions about EB.
Help us shape EB research. DEBRA International is playing a key role in encouraging the DEBRAs around the globe to take part, so you could really be part of a global EB project today!
The project is led by patients, carers and healthcare professionals – meet them here. Read more
Find out what stage the project is at, and how to get involved. Read more
Frequently asked questions about the James Lind Project and why it is so important for the EB community. Read more