01. RHEACELL phase 3 clinical trial on systemic stem cell therapy for wound healing in RDEB/JEB

This clinical trial, which is now actively recruiting for children and adults with a confirmed diagnosis of recessive dystrophic EB (RDEB) or junctional EB (JEB), is focused on testing whether stem cell therapies could help enable the body to close chronic wounds associated with these two types of EB.

To date 11 people have been enrolled for this clinical trial but there is a requirement for a further 74 people with RDEB and 5 with JEB by to be recruited by January 2025.

The UK centres participating in this study are both located in London at Guys and St.Thomas’ Hospital and Great Ormond Street Hospital, however there are also many other participating centres around the world as this is a global study.

RHEACELL, the commissioning biopharmaceutical company, will cover travel and accommodation expenses for all participants.

If you are interested in participating, please talk to your EB clinician about whether you meet the inclusion criteria and which study site would be suitable for you.

More information about participating in clinical trials

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DEBRA UK attends Liberal Democrats Autumn Conference in Brighton

Earlier this week we exhibited at the Liberal Democrats Autumn Conference in Brighton. During the two days we were there we engaged with several MPs and members of the party whom we will follow up with to request their support.
06. The Beacon Patient Pairing Scheme 4th September – 30th October 2024
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DEBRA UK supporters, Paul Glover and Martyn Rowley, raise £115,000 for families living with EB

On Tuesday 3rd September, dedicated DEBRA UK supporters Paul Glover and Martyn Rowley were welcomed to DEBRA UK's head office to celebrate their outstanding achievement of raising £115,000 in 2024 to support those living with EB.