New treatments for EB, and even new healthcare systems to support those living with EB, are only achievable with sustained, quality research.  And research is very expensive. By aligning the EB community around the questions that we most need to answer through research in order to have the biggest impact on the lives of those affected by EB, we are ensuring that everyone is spending their research budgets wisely.


We feel that investing in getting the EB research priorities right at the start will mean that we are using our research budget responsibly.  EB research is fundamental to our mission as a charity, and the James Lind Alliance process is a robust and internationally recognised process for identifying priorities for any given condition. DEBRA UK, DEBRA Canada and DEBRA Ireland are all funding this project together.